Hi -- I'm an active member of an online breast cancer patient community, BCmets.org. It's a free list.serv, founded and maintained by a man whose wife died of the disease about five years ago. I've become very interested in how social networking and other Web 2.0 capabilities could be applied to such communities. This would not only enhance the "user experience," but I'm a firm believe that the "collective wisdom" of such groups constitutes a body of knowledge that is being under-utilized in health care.
I've been working on ways to apply some of this thinking to the community I'm a part of (the list.serv owner is very supportive), and would love to get in touch with others who are thinking/doing similar things. I've also hooked up with a U of Wisconsin academic who studies this area, and we are submitting an abstract to present at an eHealth conference in DC in September. READ MORE